How My Diagnosis Showed Me Who I Really Am
By Emily | @emilyecanwood | July 3rd, 2019
Life is not easy when you go from a fully functioning human to evolving into this cute little sloth that likes to sleep all the time. Prior to my recent diagnoses of Chronic fatigue syndrome and Fibromyalgia, I had other issues but I was managing with daily life. I love to help others.
After two abusive employers, I found myself working in care. This was the best decision that I had ever made. I got to connect and understand people with so many different illnesses and help them physically and mentally to cope. I also would help them push for their independence where it was safe. Looking back now, I can see I would flare with chronic fatigue but not notice because I would put everyone first and myself last.
Several years later I moved onto a job for my local council which meant I helped those who returned home from the hospital and to get them the specialist care they needed. I got to meet all walks of life and travel around my county whilst doing this but unfortunately again I took my body for granted.
2018 has been an eye-opener for me. It was February and our beloved pug we had come to the conclusion was puppy farmed due to her short life and ill health. This is what the doctors presume started my condition. I was, of course, oblivious to this, I was getting married in six weeks and then our honeymoon.
It wasn't until I tried returning to work that my body failed. It was then I realised I didn't know how to look after myself. At the age of twenty-three, living with her husband and she didn't even remember what it was like to not be in pain. I am fortunate enough to have a brilliant doctor who helped me get diagnosed and a wonderful support system. I have an extremely large family and the ones who didn't understand me the most were the two I idolised. My mother and nan who both worked in care their entire career. It took until I had to physically be helped to stand and the use of a mobility scooter for them to accept that I unwell.
I understand that some people struggle to accept that what they cannot see cannot be real but when somebody is living with it and requires support I feel it is common courtesy to at least hear somebody out. I have spent the last four months staring at the wall and I will admit I love social media. Prior to my career in care, I worked in writing blogs and updating social media. I thought why can't I still help people from the comfort of my own bed. It proved challenging and there aren't many posts due to my bad functioning days but as I proceed on this journey I'd like to help and empower those in similar situations as myself.
I use my Instagram like a visual diary, not just for my use but for those who are curious as to how I am coping and those who want somebody to talk to who will understand and not prejudge.
I feel like this is what I'm meant to do and it all starts with me. I am learning with you.
If you had you describe Emily, you would get three choices: Quirky, Creative and Kind. Despite the recent diagnosis of Chronic fatigue and Fibromyalgia alongside her current conditions, she strives to help others and empower them. She loves ramen, reading and empowering others.